An Open Letter to ABA Folks: Introduction
Dear ABA therapists and technicians,
I’ve met a good number of you over the years. The majority of you love the kids you work with, and want to do well by them. So, for the sake of those children, please listen to some critiques of your methods. Before I start:
1) I do not categorically stand against the study of ABA, or its therapeutic application. I merely have a lot of specific concerns– concerns that come both from my own observations and from listening to dozens of autistic* teens and adults who have experienced these therapies first hand. I’m happy to give you a list of references (a good place to start is: http://jack-not-jacque.tumblr.com/post/48645978990/so-you-want-to-work-with-autistic-kids-primer).
2) I have a degree in Psychology from one of America’s top research institutions, and enough research experience to really understand how much we know– and don’t know!– about ABA and autism, given the studies that have been done. While my undergraduate focus and research were in neuropsychology, I did take classes in behaviorism as well. However, I try to avoid using too much jargon, in part to make these essays accessible to the wider public, and in part because not all programs use the terms exactly the same way.
3) If your response to anything I write is “Well, I/my program would never do THAT,” you are missing the point. Everything I discuss is being done somewhere, by someone, to autistic children and teens. If you agree that ANY of it is problematic, don’t waste your energy worrying what people think of you — worry about the suffering of all the kids who aren’t your clients. If you truly are one of the good ones, get back out there and fight against the rest. Stand up for the rights of those who have less power than you do. Talk to your supervisors and co-workers. Write articles. Bring up these issues whenever you meet autism researchers. Educate your clients’ parents. Send letters to your local editors. Talk to the teachers and counselors and psychiatrists and medical doctors who work with your clients. Help them understand just how badly some of these kids have been traumatized, and what they can do to minimize further damage.
Thank you. Together, we can do what I believe we all want to do: make a significant positive difference in the lives of autistic people.
* While some disability groups prefer person-first language (e.g. “person with autism”), the majority of people I have met who are actually on the spectrum prefer to term “autistic.” The term also encompasses those who have been diagnosed with Aspergers Syndrome and PDD-NOS. In general, whenever speaking to/about an individual, please use the terminology they prefer.