I… wow. Just wow. This is important.
As Amy Sequenzia so eloquently states: “ABA is not only abusive to Autistic children, it makes ableism and abuse acceptable. “Experts” want 40 hours/week of this and parents who don’t comply can lose their children. ABA creates a culture of normalized abuse.”
The following is a guest post composed of a series of writings by Bernice Olivas, who has generously agreed to share her experience. Hers is a harrowing story, but one that illustrates the dangers of demanding compliance on so many levels – and it is a story that needs to be understood.
It’s been two years since Nebraska’s Child Protection Services threatened to take away her children because she refused to place them in full-time (40 hrs/week) compliance-based training.
She and her husband were never accused of abuse or neglect, the only reason CPS was involved with her family was because her children are autistic and some…
View original post 2,605 more words
…He meets me at the door, eyes wide. Takes my hand, looks into my face intently, bounces up and down in place. I give him my biggest smile and squeeze his hand. “I’m happy to see you, too” I tell him. Later, I read to him, ASAN’s “Welcome To The Autistic Community (Adolescent).” He doesn’t usually want me to read to him for very long, but this time he doesn’t interrupt me at all…
His flapping hands and bouncing feet are so beautiful to me.
…Another day, another child. I spend the afternoon pushing him on a rope swing in the backyard– around and around he goes, shrieking with happy laughter. Then he gets down, gestures emphatically. “You want me to get on the swing?” Nods. I try to refuse– I’m too big, too old. He is firm. He wants to share, to give me a turn me to experience what he did. I get on the swing and he pushes me, intent on his task. I smile, I laugh, I get dizzy. He laughs with me. I thank him for his insistence that I try….
His solemn demeanor and meticulous nonverbal instructions are so beautiful to me.
…Yet another day, another child. “You want to leave already? I don’t know what’s wrong!” says a mother as her son tugs her towards the door of the arcade room, “I thought he liked it here!” I am surprised– she doesn’t see what I see. “He does like it here,” I explain “But he’s feeling a little overwhelmed and needs to be somewhere quiet for a few minutes.” I lead him to an unused room. He lies on the floor, cool linoleum under his hands, gazing out the window through dark lashes. I sit beside him quietly until I see the tension leave his body. I stand, offer him a hand. “You ready to go back in?” After a moment, he takes my hand, gets up, and we walk back into the arcade together…
His hummed tunes and verbal sound effects are so beautiful to me.
…And yet another. It’s her birthday and I sit next to her on a large trampoline while small children clamber all over me. She bites a stuffed animal happily on the nose. The younger girls do tricks, reminding each other to be careful around her– she’s bigger than they are, and much clumsier, prone to unexpected movements. Indoors, I catch her hand heading for a bowl of dip. I help her sit, feed her bites of chips and dip. She grabs for a strawberry daiquiri that one of the parents is drinking. I laugh and ask her mom to fix her up a non-alcoholic version. Gluten-free brownies stand in for chocolate cake. We all sing happy birthday and she claps her hands…
Her happy shrieks and shaky hands are so beautiful to me.
Every one of these kids is nonverbal and considered “seriously” disabled. I consider myself profoundly lucky to have them in my life. And I will speak up for them, for their needs and rights and desires… because, while I am not and have never been “seriously” disabled, I know what it’s like to /need/ a few minutes away from the sound of other humans… To make a sound over and over just for the fun of it… To express excitement with my body instead of my voice… To have to fight my own body sometimes…
We all have the right to learn in a way that makes sense to us, to live in an environment that doesn’t hurt us, to be part of a society that accepts the things we need in order to be safe and healthy and happy and whole. We deserve to be ourselves, our whole selves, and to be accepted for it even when we are not understood. We deserve to be loved for our quirks, not in spite of them. There will always be problematic systems and problematic people in our lives. But my greatest wish for every autistic person is that at least one person close to you, in your life, appreciates how wonderful you are, exactly the way you are.
Because flapping hands are beautiful. And nonverbal communication is beautiful. And sensory obsessions are beautiful. And trying your best is beautiful. And enjoying yourself in ways others don’t understand is beautiful. And sharing those experiences with others is beautiful. Quirks and tics and routines are beautiful. And so are all of you.
*** read more posts at https://autismpositivity.wordpress.com