Welcome, new readers. Your support is greatly appreciated. Please be advised that, due to the way my brain functions, my typical pattern of online presence consists of 1-5 days of intense activity, followed by weeks or even months offline. I am trying to learn to engage on a more regular basis, but my disabilities don't… Continue reading Welcome!
Things that need saying
This blog is where I write primarily about disability rights, drawing both from my job as a caregiver and from my own experiences as a person with chronic illness. I have a BS in psychology, with a concentration in cognitive and neuro psych. Since graduation, I have worked as a psychology research assistant, tutor, and as… Continue reading Things that need saying
Yes, THOSE Kids
Life isn't always easy. Love isn't always easy. Autism isn't always easy. Embrace them all anyways.
Stop Pathologizing Autistic Play
A topic came up in an autism support group I frequent. A mother said that her son's Early Intervention therapist was trying to get him to stop "repetitive play," and play more the way typical children do. The mom didn't see any harm in repetitive play, but the therapist claimed her son was doing the… Continue reading Stop Pathologizing Autistic Play
Playfulness Yields Insights
A lot of my time with "Euterpe," a young woman with developmental delays and a strong speech impediment, is spent on vocal play. That might be the formal term for it anyway: we're just playing around, and it's largely a matter of me trying to keep her entertained, which takes some doing. [Note: my code… Continue reading Playfulness Yields Insights
Blogging while disabled: A quick cross-post from my social media
I woke up this morning. This may not, in fact, sound like much of a surprise. I am obviously not in a coma, so technically speaking I wake up every morning. However, to give you some idea of what I mean, let me detail how I woke up yesterday. Yesterday, after drifting in and out… Continue reading Blogging while disabled: A quick cross-post from my social media
Rosy glasses?
Many non-autistic parents of autistic children complain that people who are pro-neurodiversity put an unrealistic positive spin on life with autism. They say we ignore the struggles, the pain, and the unhappiness experienced by both parent and child. I think this complaint oversimplifies the neurodiversity approach. I think it's possible to acknowledge struggles without making… Continue reading Rosy glasses?
Behavior diagrams and flow charts
I often think of things from the perspective of a scientist or engineer trying to solve a problem. It can help bridge the gap between different communication styles, such as autistic and non-autistic, in a way that respects both. Here is an example: Autistic children are often taught to look up and make eye contact… Continue reading Behavior diagrams and flow charts
Perspective
A recent outing with a client taught me a lot. It was one of the days when I take him out somewhere rather than spending time at his home. We've been using a small handful of snapshots on my phone to communicate for the past couple months. It's not ideal, but it's something easily portable… Continue reading Perspective
Don’t Mistake Inability for Not Understanding
I am having trouble using language lately, so this will be short. We talk about presuming competence, or intelligence, or potential, in autistic people. But that doesn't mean the person can always act on their understanding. Someone who struggles with OCD knows that it isn't necessary or even healthy to wash their hands 100 times… Continue reading Don’t Mistake Inability for Not Understanding
Briefly, #blm
I haven't posted here recently, and I generally try to avoid political posts. But this isn't a political position; it's a philosophical stance: Black Lives Matter. Period.
Dear White People, This is What We Want You to Do
I don’t want you to feel at ease. I want you to know that you are the byproduct of a successful racist regime that has capitalized off of Black oppression and suppression for centuries. I want you to shed light on the corners of your subconscious you’ve glossed over for years. I want you to… Continue reading Dear White People, This is What We Want You to Do